The Final Conversation With the Speechless Boy- A Disability Story

Noor has departed from this world. He shines on in the next. The last 6 months had been difficult because his health kept deteriorating.

Due to other ventures my visits also turned less frequent. It gave me a lot of joy at the fact that he used to smile often when he heard my voice.

I was there to see him on his last day. I had a strong feeling that it was his last few hours remaining. I felt a strong presence of light all around him. Angels were waiting for the moment to wrap his soul with the martyr’s robes. He was a warrior to the end.

His soul rests ever untainted, his resurrection too will signify purity. A sound heart!

What was my last conversation with Noor about? I reminded him that these were the best 10 days and the final month of the year, Dhul hijjah. His desire to reject eating and drinking signified his will to fast these last days of his life. His desire? It would be rather proper to say his forbearance.

Our last conversation were prayers. I prayed for him and I hoped that he did for me. He was silent through out it all. But I knew he could hear me. Why was I the last person besides his family to be with him in his last moments? I don’t know the answer to this. Why was it that his last moments were written on the day that I visited him? I am still pondering over the time I spent with him, caring for him.

What lessons were there to learn for me? What was he trying to teach me? He tried his best to elevate me. I hope that some of those experiences go on to stay with me. Looking after him was like feeding my soul, guiding it. Now he is no more, and my ravenous soul may dry up. I am seeking an anchor to keep my soul centred. I am seeking light. It is easy to wander in darkness, it takes courage to be the warrior of light.

His body looked at peace in shrouds. A sort of smile on his face. It reminded me of these verses:

يا ايتهاالنفس المطمئنة. ارجعى إلى ربك راضية مرضية. فادخلي في عبدي. وادخلي جنتي.

Ramadan

More mercy and blessings

https://macropassions.wordpress.com/2020/04/24/ramadan/

A conversation with the Speechless Boy! A disability story

“Good Morning Noor!” I try say it with a burst of energy, putting in warmth with every word uttered. Noor lays there in his bed snoring. Sleeping like a baby on his side. He is positioned to sleep every night. I will leave the other details of his routine for another time. Today, I wanted to talk about how he can whisper, if you focus and listen. If you pay a little attention, he tells you how he feels.

“Stay by my side.” He tells me. Hold my hand, when I cry. It soothes me. He reminds me that because he doesn’t have the capacity to think, he feels everything. A kind and gentle touch is what he seeks and loves the most.

I ask him why is it that not all touches are gentle. He tells me, “It’s not that they are not. It’s just the part of their job. Routine and time keeping often takes up their attention. But you, you are here to help slow things down and be gentle.” I chuckle when he says that. “Hmm… I wonder, so if I can slow down the routine work a little, do you mean I can inject some gentleness and kindness into it all.”

“That’s exactly right,” he says. He continues, “A little slow and steady, although I will tell you that people looking after me have the warmest heart and are most experienced. They have known me for a long time. So they also understand the nuances and expressions I convey, that much more.” He chuckles again and adds, “Yes, that’s right, they know when I am being a cry baby and throwing a tantrum.”

“That makes sense!” I tell him. “I read through your file and case to understand your needs better.”

He smiles when I tell him that. It’s a lot of effort and work to look after you, ain’t that right! He beams upon hearing me say this. I take a deep breath then centre my thoughts, so our conversation doesn’t distract us from looking after him.

He is a big star wars fan. He loves marvel and has watched every movie. In the movies, he tells me,”I fall asleep and then I am in the movie. I dream the movie, that’s how I watch them.”

“Wow, you must have the best dreams. You are really imaginative and creative.” I tell him. I then tell him about some of my experiences where I have dreamt the storybooks, audiobooks and podcasts. He is joyed to hear it and happy that he shares the similar experiences.

“You sure do, but you’re much more creative. It must be similar to watching anime.” As I tell him this, I realise that he has fallen asleep. Perhaps dreaming another movie and bringing our conversation to a close.