A conversation with the Speechless Boy! A disability story

“Good Morning Noor!” I try say it with a burst of energy, putting in warmth with every word uttered. Noor lays there in his bed snoring. Sleeping like a baby on his side. He is positioned to sleep every night. I will leave the other details of his routine for another time. Today, I wanted to talk about how he can whisper, if you focus and listen. If you pay a little attention, he tells you how he feels.

“Stay by my side.” He tells me. Hold my hand, when I cry. It soothes me. He reminds me that because he doesn’t have the capacity to think, he feels everything. A kind and gentle touch is what he seeks and loves the most.

I ask him why is it that not all touches are gentle. He tells me, “It’s not that they are not. It’s just the part of their job. Routine and time keeping often takes up their attention. But you, you are here to help slow things down and be gentle.” I chuckle when he says that. “Hmm… I wonder, so if I can slow down the routine work a little, do you mean I can inject some gentleness and kindness into it all.”

“That’s exactly right,” he says. He continues, “A little slow and steady, although I will tell you that people looking after me have the warmest heart and are most experienced. They have known me for a long time. So they also understand the nuances and expressions I convey, that much more.” He chuckles again and adds, “Yes, that’s right, they know when I am being a cry baby and throwing a tantrum.”

“That makes sense!” I tell him. “I read through your file and case to understand your needs better.”

He smiles when I tell him that. It’s a lot of effort and work to look after you, ain’t that right! He beams upon hearing me say this. I take a deep breath then centre my thoughts, so our conversation doesn’t distract us from looking after him.

He is a big star wars fan. He loves marvel and has watched every movie. In the movies, he tells me,”I fall asleep and then I am in the movie. I dream the movie, that’s how I watch them.”

“Wow, you must have the best dreams. You are really imaginative and creative.” I tell him. I then tell him about some of my experiences where I have dreamt the storybooks, audiobooks and podcasts. He is joyed to hear it and happy that he shares the similar experiences.

“You sure do, but you’re much more creative. It must be similar to watching anime.” As I tell him this, I realise that he has fallen asleep. Perhaps dreaming another movie and bringing our conversation to a close.

Words of a speechless boy! A disability story

Care for me! Love me, don’t abandon me. Don’t kill me, I fear that someday I would be left to die alone. Why? Why do I have these thoughts? I am not capable of seeing? My vision is a blur of hues on the spectrum. All I see is light. It’s like I was born to witness the Light of God.

I can only hear from one ear. My body needs to be cared for. Nor can I walk, neither do I have the capacity to sit.

If you were to leave me, I would just lay there breathing. Don’t leave me! Oh! How I wish you could hear my thoughts?

Do you think that I haven’t wondered why was I born this way? Why was I born a burden to those around me? Yet, here I am still cared for. My mother told me this, son you are fortunate to live in a wonderful country that has a sound social welfare system. Were we to find ourselves in a different country and under different circumstances, I would have loved you the same but I often think, whether I would have been able to provide the same level of care to you.

Hearing this I thought, God brought me here, so people can look after me and feel grateful for what they have. In looking after me, many have found themselves and many have questioned themselves. Those who found themselves turned ever so grateful for all the blessings they were blessed with. However many, if not many, even then the blessings surrounding them enumerated suddenly! Those who questioned why do I have to be doing such work, found that life was difficult and that their conditions were worse than mine.

I feel this all through their touch, most are compassionate. I do wonder sometimes whose touch is sometimes harsh and negligent, are they not compassionate? Why care for me, if you do not actually care for me? I have a family like you. I focus on my thoughts so hard sometimes I feel as if I could communicate with them through these. A family that loves me, like a family that loves you? Do you not have anyone that loves you?

I smile, when I am happy. I cry, when I am in pain. I sleep, when I am tired. I share many emotions and feelings just like you. So what if, I cannot see or hear, taste or touch, sit and walk, speak and run like you. I am still as human as you. I am flesh, I am blood, I am bones and skins, I was birthed. I have a mother just like you. I know many don’t have mothers, children that are orphaned. I feel sorry for them. Yes, I do! Did you think that I am ungrateful? How can I be? When the wonders of world have been kept hidden from me? I feel no envy, I feel no hate. I hold no grudge. Yes, even for those whose touch is negligent. I feel sorry for them. I think to myself, why are they not grateful for the blessings they have?
Some are overwhelmed when they see me or try care for me. They cannot fathom what my life is like. But to them, I can only hope that they hear my thoughts, I am here in this world for a short while. For as long as I remain, I am blessed with the light that I see. A constant light as if Mercy itself enveloped me. I have a name too, just like you. You may think, I have no capacity to think but that is the state of my mind. Yes it is, but I am the one who thinks with his heart. I feel every emotion surrounding me.
When I feel the negativity around me, I send out my heart’s waves. Thus I share some light that I see, with you. I wish you could see what I see. If you could, you would rather be me in my place.
I leave you with these thoughts, and I hope you hear me. ‘Which of your Lords blessings will you deny?’

Time

In this eternal space, bounded by the time

Seconds tick away and I continue to write these rhymes

The world wakes up to chase after dimes,

Many lose the sense of time…

Some will commit horrible crimes…

Domestic violence…blame it on excess wine

Meanwhile the children suffering and crying…

Clinging onto the past, this vicious cycle will continue unless we grab hold of the time…

Become aware of the possibilities and align,

Our choices and actions, guided by hopeful times…

Unlock the latent potential,

Uncover it with rhymes…

Image Credit: Sheryl Elliot