A conversation with the Speechless Boy! A disability story

“Good Morning Noor!” I try say it with a burst of energy, putting in warmth with every word uttered. Noor lays there in his bed snoring. Sleeping like a baby on his side. He is positioned to sleep every night. I will leave the other details of his routine for another time. Today, I wanted to talk about how he can whisper, if you focus and listen. If you pay a little attention, he tells you how he feels.

“Stay by my side.” He tells me. Hold my hand, when I cry. It soothes me. He reminds me that because he doesn’t have the capacity to think, he feels everything. A kind and gentle touch is what he seeks and loves the most.

I ask him why is it that not all touches are gentle. He tells me, “It’s not that they are not. It’s just the part of their job. Routine and time keeping often takes up their attention. But you, you are here to help slow things down and be gentle.” I chuckle when he says that. “Hmm… I wonder, so if I can slow down the routine work a little, do you mean I can inject some gentleness and kindness into it all.”

“That’s exactly right,” he says. He continues, “A little slow and steady, although I will tell you that people looking after me have the warmest heart and are most experienced. They have known me for a long time. So they also understand the nuances and expressions I convey, that much more.” He chuckles again and adds, “Yes, that’s right, they know when I am being a cry baby and throwing a tantrum.”

“That makes sense!” I tell him. “I read through your file and case to understand your needs better.”

He smiles when I tell him that. It’s a lot of effort and work to look after you, ain’t that right! He beams upon hearing me say this. I take a deep breath then centre my thoughts, so our conversation doesn’t distract us from looking after him.

He is a big star wars fan. He loves marvel and has watched every movie. In the movies, he tells me,”I fall asleep and then I am in the movie. I dream the movie, that’s how I watch them.”

“Wow, you must have the best dreams. You are really imaginative and creative.” I tell him. I then tell him about some of my experiences where I have dreamt the storybooks, audiobooks and podcasts. He is joyed to hear it and happy that he shares the similar experiences.

“You sure do, but you’re much more creative. It must be similar to watching anime.” As I tell him this, I realise that he has fallen asleep. Perhaps dreaming another movie and bringing our conversation to a close.

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